The first specialized association of patients to advocate for their rights
and interests to the pharmaceutical companies has been established in
Ukrainian Community Advisory Board (UCAB) was launched on December 10, 2010
at the initiative of the All-Ukrainian Network of PLWH. UCAB is the first
specialized association of HIV/AIDS, tuberculosis and hepatitis patients in
Ukraine to advocate for their rights and interests to the pharmaceutical
business and government.
UCAB will aim to promote access to quality treatment in Ukraine by community
influencing on drugs procurement policy.
"Over 100 million hrivna was spent just on governmental procurement of ARV
drugs. These are really enormous funds. Therefore, we as the civil society,
must understand how these funds are spent and what is the quality of drugs
we take daily" – said Dmytro Sherembei, UCAB chairman and deputy Head of
All-Ukrainian Network of PLWH.
UCAB primary objectives will focus on establishing transparent dialogue
between patients, pharmaceutical companies and state agencies, reforming the
public procurement system, as well as raising treatment awareness among
patients, the UCAB members.
9 representatives of patient organizations joined together as UCAB members
at the first meeting and approved documents regulating UCAB principles of
work. It is planned that this membership will be expanded to 20 people in
"We hope that UCAB will be as powerful association as the European Community
Advisory Board (ECAB), which is one of the key partners in the European
policy on pricing and access to drugs, – said UCAB deputy chairman Olha
Havrylova, chairman of PO "Stop Hepatitis". Over the years ECAB has become a
powerful body that influences the registration of new drugs in the market of
Europe and prices for medicines, as well as controls the availability of
drugs in the market".
The first UCAB open meeting with representatives of pharmaceutical companies
will be held at the end of January 2011. NGO representatives and media will
be invited to the meeting.